About us
Dear users,
unfortunately the G6PD Deficiency Association, active since 2001, has to close its activities as association, but it leaves for free its website and mobile application for searching safe and unsafe drugs and trade names for people with G6PD deficiency.
The webiste www.g6pd.org has been created by Chanan Zass initially only in english in the 1996, to reach the 400 million people affected by G6PD deficiency all around the world. Later, we also added one version in Italian; In Italy there are about 400.000 people affected by G6PD deficiency.
The website keeps researched and articles about the deficit, including some work, also unpublished, kindly made available by the most expert members of the international medical research and scientific community about the G6PD deficiency, who have been keeping us posted about the last publications and the ongoing researches.
Among the ones that have supported us during these years, we want to mention: the late Prof. Ernest Beutler, that back at the time was at Scripps Research Institute, La Jolla, California, considered an historical leader about the G6PD researches; Professor Lucio Luzzato, the first one to isolate the gene of the G6PD deficiency and to run researches about the gene therapy of the deficit; Professor Paolo Ninfali, who run studies about the variances of the deficit (there are about 400 of them) and about G6DP deficiency and sport; Professor Tullio Meloni, the Italian pediatrician with most experience with the G6DP deficiency.
Recently, we added articles about Covid 19.
We created a database that includes drugs and trade names to be avoided by people affected by G6PD deficiency in collaboration with the Centre for rare diseases of Padua represented by Professor Facchin, Director of the department and the registry of rare diseases of Padua, and based on data from the Italian "Istituto Superiorie di Sanità".
Later, we created a mobile application to make it easy to find drugs and trade names.
We have also prepared, with their permission, a list of accredited medical centers that deal with G6PD deficiency.
All this has been so far managed non-profit by the Association. From now on it will be managed by me, who I have been the president of the association.
In the website there are also some researches, otherwise not available for many users, from the "Istituto Superiorie di Sanità" that kindly allowed the reproduction.
We have done our the best to assist people affected by the G6PD deficiency and their family members, safeguard their civil rights and sharing knowledge about the G6PD deficiency (considered a "rare disease" till few years ago).
Inside the website you will find our brochure that summarizes dangers and peculiarities of the deficiency, with an overview of drugs to avoid and to take with caution. The brochure is in two version, in italian for distribution inside schools, pharmacies and hospitals, and in english, for those abroad.
This brochure has been translated in different languages and used by some European institution, like the Swedish minister of healthcare.
Michela A. Calderaro and Chanan Zass