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Online Since 1996

 
Dr. Ernest Beutler
(Sep. 30, 1928 – Oct. 5, 2008)

Dr. Ernest Beutler, who first identified the G6PD enzyme deficiency in 1953, the man who was most instrumental in establishing this Web site back in 1996, a giant among scientists and a most generous, gracious person, passed away on October 5.
See obituaries in The Los Angeles Times and The New York Times. A more detailed biography on Wikipedia. To read some of his articles, turn to our list of Research Papers.

HOW TO SUPPORT US - G6PD DEFICIENCY ASSOCIATION

Your contribution counts. You will be helping us to provide information and educate patients and medical personnel (as well as you and your family) about the various aspects of G6PD deficiency and the latest developments in this field.

Your contribution will help the Association to continue offering health care, social and psychological assistance as well as legal guidance to persons affected by the deficiency.

You will also be helping us organize medical conferences that focus on the latest developments in the field; courses to medical staff; and distribution of our brochure to hospitals, pharmacies, schools and school kitchens.

How can you help the Association?

Please select a type of membership: (membership in the Association is granted by the President of the Association subject to validation of candidate's data; please read our Privacy Policy and Terms of Use):

New members are sent Donor or Contributor Cards by priority mail (in English only).
   A Donor or Contributor Card is strictly personal and by issuing it the Association does not certify that its holder is a G6PD deficient subject; the Association does not authorize its holder to represent or perform any task for the Association.
   A doctor may certify that the member is G6PD deficient by signing in the provided space on the back of the card.
   Family Contributor cards are meant for persons who are part of a family where at least one is G6PD deficient. Each family member receives a card.
   The Association disclaims any liablity and will not be held responsible for damages deriving from an improper use of a membership card.



The Association is affiliated with UNIAMO, Italian Federation for Rare Diseases, which in turn is member of EURORDIS, European Organization for Rare Diseases.

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WARNING: All content published on this Web site is copyrighted by the "Associazione Italiana Favismo - Deficit di G6PD" unless otherwise specified. Copying, reproducing or publishing any of this content in any form or medium without our express written permission are strictly prohibited.

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