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Online Since 1996

 
Dr. Ernest Beutler
(Sep. 30, 1928 – Oct. 5, 2008)

Dr. Ernest Beutler, who first identified the G6PD enzyme deficiency in 1953, the man who was most instrumental in establishing this Web site back in 1996, a giant among scientists and a most generous, gracious person, passed away on October 5.
See obituaries in The Los Angeles Times and The New York Times. A more detailed biography on Wikipedia. To read some of his articles, turn to our list of Research Papers.
Assistance

 Neonates
NeonatesA must-read for new parents. Learn of common risks and what to watch out for in the most delicate moment in the life of a G6PD deficient baby.

 Health Care Providers
List of health care providers and test labs near you: check your enzyme level and diagnose your G6PD deficiency.

 Unsafe Drugs
List of drugs and foodstuff that should be avoided by G6PD deficient patients.

 Safe Drugs
List of drugs that can be safely given in normal therapeutic doses to G6PD deficient subjects (some of the listed drugs appear also in our Unsafe Drug List under "low risk").

 Web Links
Links to additional sources of inforamtion available online.


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The Association

The Association offers assistance to persons affected by the G6PD enzyme deficiency and their families, including helping them protect their social rights and collect their benefits, informing and educating affected persons and the medical community on all aspects of the deficiency (deemed a "rare disease" in most countries).

 Brochure
View or print this quick reference handout, including answers to frequently asked questions, lists of drugs and foodstuff to avoid or that are safe to take, and more.


The Association is affiliated with UNIAMO, Italian Federation for Rare Diseases, which in turn is member of EURORDIS, European Organization for Rare Diseases.

UNIAMO: Federazione Italiana Malattie Rare

Orphanet


Eventi

 News
   

 News:
Rare Diseases
 OrphaNews Europe: Newsletter of the Rare Diseases Task Force (2008)

 Calendar:
Rare Diseases
The Association participates in the following events:


February 28, 2009
 
The Association is affiliated with UNIAMO, Italian Federation for Rare Diseases, which in turn is member of EURORDIS, European Organization for Rare Diseases.

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